Attitude is everything

Good Morning Brave Friends and Parkinson’s WarriorsRecently Parkinson's NSW published an article on the Five Stages of Parkinson's. Although we are all unique, apparently Parkinson's Disease does follow a broad pattern that has been divided into five typical stages known as the Hoehn and Yahr scale. I understand that this may be helpful for physicians, but use of this scale outside of this has always, to be honest, really irked me. I have no wish to be pigeon-holed and placed in a box. Some comments on the Parkinson's NSW facebook page show I am not alone. Jen wrote "As a person with PD , I am not a fan of stages " .e Dyer.

Benefits of Parkinsons Support Group

Good morning Parkinson's friends and family I see one of the benefits of convening a Parkinson's Support Group is that I get to meet so many wonderful, unique people I would never have had the opportunity to meet otherwise. I delight in greeting them along with their partners or alone as they arrive and begin to mingle before our meeting commences. I am especially mindful of, and always touched by the love, respect and care that partners of people living with Parkinson's demonstrate , in all their thoughtful actions and kindness of words. It has not, over the years, been uncommon for the person living with Parkinson's to confide in me that they would be lost without this special person in their lives. As Carer's Week approaches, I believe it is so vital to take time to look at the carer role. Many of those living with Parkinson's , through daily interactions , remain acutely aware of the role that person plays in their lives. 

Inflammatory Bacteria in Nose Linked to Parkinson’s Risk

by Marisa Wexler

People with Parkinson’s tend to have high numbers of pro-inflammatory bacteria in their noses, according to a new study.Researchers think these bacteria may be a trigger for inflammation in the brain, which could help to set the stage for the development of Parkinson’s.The study – Deep nasal sinus cavity microbiota dysbiosis in Parkinson’s disease – was published in npj Parkinson’s Disease.Our bodies are home to billions of bacteria and other microorganisms, collectively referred to as the microbiome. These tiny creatures play important roles in health and disease that are only beginning to be understood.

Having Control Over Your Progression

Hello to my Parkinson’s family and friends. Now I may be beginning to sound a little like a broken record, but I make no apology for that! 

This is vital. I sometimes, not often, come across those who are newly diagnosed and their response has been to give up; to accept this as their lot, and to succumb to whatever this invader metes out to them. 

I want to stress today that you, yourself, even though it may be hard to believe, have enormous control over the degree of progression of your illness, and in some cases, you can even begin to fight back and regain the use, the flexibility, the control over your progression.

Parkinsons and Anxiety

Hello to all our members of the Parkinson's community, friends, family and other folk who care. One of the most debilitating and annoying symptoms of Parkinson's Disease is anxiety.

Finding out about us and other resources

Lismore Parkinsons Support Group : Finding out about us and other resources